usher-syndrome.org↗
Unraveling Usher syndrome
The Usher Syndrome Coalition is the most comprehensive resource for the global Usher syndrome community, bridging the gap between researchers and families.
| Organisation | Usher Syndrome Coalition |
| Address | 9 Cornerstone Square, Suite 400-224, Westford, MA 01886 |
| Website | usher-syndrome.org ↗ |
| info@usher-syndrome.org | |
| Phone | 800-946-9203 |
| Phone | 631-533-9621 |
| X | @UsherCoalition ↗ |
| UsherSyndromeCoalition ↗ | |
| Site language | English |
| Last read | 20 Sep 2026 |
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