kif1a.jp↗
KIF1A関連神経疾患家族会 たこやきの会
KIF1A(キフワンエー)関連神経疾患、それは、世界でわずか550名程度しか報告されていない、極めてまれな遺伝性疾患です。私たちは、社会のみなさまと温かな支援の輪を作ることで、当事者の不安を安心に、孤独を繋がりに変え、一人ひとりが自分らしく幸せに暮らせる社会の実現を目指しています。当事者の方も、活動に関心をお持ちの方もこの輪に加わりませんか。
| Website | kif1a.jp ↗ |
| X | @kif1a_japan ↗ |
| Page ↗ | |
| @kif1a.japan ↗ | |
| YouTube | @KIF1AJapan ↗ |
| Site language | Japanese |
| Last read | 1 Oct 2026 |
Sites sharing its less common technologies
| Rank | Site | Description | Technologies | Language |
|---|---|---|---|---|
| 32 | Discover how the EU functions, its principles, priorities; find out about its history and member states; learn about its legal basis and your EU rights. | Piwik PRO CoreDrupal+5+6 | English | |
| 61 | Discover and play over 320 million music tracks. Join the world’s largest online community of artists, bands, DJs, and audio creators. | Trident ABSoundCloud+4+5 | English | |
| 70 | We bring you the future as it happens. From the latest in science and technology to the big stories in business and culture, we've got you covered. | HTTP/3Amazon CloudFront+2+3 | American English | |
| Ad | Serpex Search APIserpex.dev | The fast, affordable search API for AI & data projects. | Google AnalyticsNext.js | English |
| 72 | Home Page | AhrefsHugo+9+10 | American English | |
| 75 | Find statistics, consumer survey results and industry studies from over 22,500 sources on over 60,000 topics on the internet's leading statistics database | Google Tag ManagerAmazon CloudFront+2+3 | English | |
| 82 | Eventbrite - Discover the Best Local Events & Things to Do | Next.jsReact+4+5 | English | |
| 93 | Welcome to the United Nations, it's your world. | Google AnalyticsGoogle Tag Manager+9+10 | ||
| 341 | Next.jsReact+3+4 | English | ||
| 406 | Bustle is the premier digital destination for young women. Since launching in 2013, Bustle has been creating relatable and impactful dialogue through content from a diverse set of voices. Covering politics, sex and relationships, fashion, beauty, entertainment, and more, Bustle empowers women to be curious, to be themselves, and to be excited about owning their place in the world. | HTTP/3Amazon CloudFront+2+3 | English | |
| 429 | Unrivaled access, premier storytelling, and the best of business since 1930. | Next.jsReact+4+5 | English |
Is this your site? Request removal of the kif1a.jp page.
