genie-peer.jp↗
GENIE 先天異常を持つ子と家族の支援システム
GENIE(ジーニー)は、生まれつきの症状や先天異常症候群をもつ患者さんとそのご家族、そして医療者を結ぶ希少疾患の支援・情報提供システムです。患者さん・ご家族と医療者が連携して、みなさんが「疾患情報とつながる」「家族同士でつながる」「医療機関とつながる」ためのw支援を目指しています。
| Website | genie-peer.jp ↗ |
| Site language | Japanese |
| Last read | 1 Oct 2026 |
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